Category Archives: Disability and Life

Life with PXE

As my readers know I deal with PXE When I was diagnosed, in childhood, little was known about PXE. The dermatologist who diagnosed me and my two siblings told us not to believe the literature that said we would die … Continue reading

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Thanks but not this gift

Late Wednesday I asked Jon “if you could give me a gift..any gift what would it be. I wasn’t ready for the reply. He told me he’d give me a healthy body. He told me he would want to take … Continue reading

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Dear Parental Units

Dear Parental Units, It seems that I’m the recipient of an opening in the space-time continuum and being as I’m a very brainy baby I’m going to take advantage of it. I don’t know how long I’ll have to say … Continue reading

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Walking Tall. Standing Proud.

I walk slowly down the path. Myrtle Mae and I are headed to the bus station. This path isn’t always clear so I’m glad that Myrtle Mae is out guiding me and protecting me from dangers I can’t see. It … Continue reading

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Night Walking & Maira

I guess you could call today “Maira Eve” and as I have been thinking about my life and events that lead to this very day I thought I’d update the original posting. This post tells of how I came to … Continue reading

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